CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • CF Awareness Month: Nasal polyps

    Nasal polyps are very common in CF.  I, myself, have had a number of sinus surgeries to remove polyps.  I have lost count how many surgeries.  During the surgery they go up through your nose into the sinuses and remove all the polyps and make bigger openings if needed.  It is not a fun surgery by any means.

    There have been cases where an ENT (Ear, Nose and Throat) doctor has noticed polyps and suggested that the person be tested for CF because polyps are so profound in people with CF.  Then they tested positive for CF.  It is interesting how different signs/symptoms are prominent in some and nearly undetectable in others.  The reason for that is that CF is very unpredictable. (more…)

  • CF Awareness Month: Osteoperosis

    People with CF are very prone to having osteoporosis, or any degree of osteopenia.  Osteopenia is a condition where bone mineral density is lower than normal.  Osteoporosis is where there is a loss of bone mass and density.  This means that you are more prone to fractures.  CFers are prone to these bone conditions because of the absorption issues with digestion.  We don’t get all of the nutrients from the foods we eat because they can’t be digested correctly.  Most all CFers should take a multi-vitamin, whether it is the vitamins specifically for CF or an over the counter one.  Extra vitamin D and calcium should also be taken to help keep bone health strong.  (more…)