CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Surgery Roll Call

    I thought I would share my surgery history. Surgeries come with the CF territory. Some people start life with a surgery and others don’t have any for a long time, depends on the person.

    I have had multiple sinus surgeries, I have lost count. My first sinus surgery was when I was 10 and my last was when I was 21. I did have one a year for awhile. During the sinus surgeries they clean out all the infection and polyps (basically a growth in the sinus) that have formed. They also have had to drill holes in the sinuses to help them to drain. Your sinuses are just holes in your head. They are not like lungs that are a sack. Sinus surgery is painful but pays off in the long run. When you have lots of thick bacteria infested mucus in your sinuses it can infect your lungs. The lungs and sinuses like to share with each other therefore it is best to get the sinuses checked out. Some children have been referred and later diagnosed with CF after being seen by an Ear, Nose and Throat doctor due to having polyps in their sinuses. Polyps are very common in people with CF. Sinus irrigation is common practice for people with CF. It is good to rinse as much out as possible and hope that you don’t have to have surgery.
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  • Chapter 11 – Journal Exerts

    “Playing the Cards Life has Dealt”

    This journal is from my caringbridge site (www.caringbridge.org/visit/65rosescf) that I started to help keep everyone up to date about how I was doing.  It helped because it was one place that everyone could go and even sign up to receive emails when I posted a new entry.  I then wouldn’t have to repeat myself a million times.  My first entry was on July 26th, 2006.  I am very thankful for the caringbridge site; it has helped family and friends stay current on how I am, even family that I don’t get to see because they are states away.

    As I post on my caringbridge page I always wonder if anyone is really reading it.  Then I get emails or messages in the guest book from people whom I have never met but they are reading it because they found my page through someone else.  Just to know that I am helping and encouraging someone by sharing my journey helps me keep going. Without further ado, here is my journey…..This is only a small snippet.

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