• “Playing the Cards Life has Dealt”

    This journal is from my caringbridge site (www.caringbridge.org/visit/65rosescf) that I started to help keep everyone up to date about how I was doing.  It helped because it was one place that everyone could go and even sign up to receive emails when I posted a new entry.  I then wouldn’t have to repeat myself a million times.  My first entry was on July 26th, 2006.  I am very thankful for the caringbridge site; it has helped family and friends stay current on how I am, even family that I don’t get to see because they are states away.

    As I post on my caringbridge page I always wonder if anyone is really reading it.  Then I get emails or messages in the guest book from people whom I have never met but they are reading it because they found my page through someone else.  Just to know that I am helping and encouraging someone by sharing my journey helps me keep going. Without further ado, here is my journey…..This is only a small snippet.

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  • “Playing the Cards Life has Dealt”

    My family is great.  I love them so much.  I have had a hard time letting my family into the true side of things.  I know they have their own range of emotions about me having CF and how it makes them feel.  I know they are scared about it all in their own way.  The bottom line is CF and all that goes along with it sucks.  When I was younger I was more vocal about how it sucks just for the simple fact that I was a rebellious teenager.  The older I got the more I have tried to “hide” the reality of it all from people.  I would like to write to my family now:

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