CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Cystic Fibrosis Awareness Month

    May is Cystic Fibrosis Awareness Month. If you are friends with me on Facebook or Instagram you will be seeing a lot of CF awareness posts this month. I won’t flood my blog with them. Haha.

    I’m aware of CF everyday, there’s no getting around it. I’m currently on IVs and prednisone for an exacerbation which means a CF infection. My lung pain that I was having is mostly gone thankfully. I will do lung functions on my home spirometer tomorrow and send them into my doctor. Hoping they are up some without the pain. Tomorrow night will be one week of IVs. I have one more week to go for a 14 day total round. I will be done with the prednisone tomorrow, I believe. Can’t remember, I take so many pills they all blend together. Haha.

    If you have any questions about CF feel free to comment or email me at ltlhook@yahoo.com.

    Until next time…

  • IV Time Yet Again

    I have been having back lung pain for 2 weeks so I called for a chest X-ray yesterday. I had a Telehealth with my CF doctor this afternoon. My X-ray was actually decent. With the pain, increased cough and more shortness of breath we decided that I will do IVs and a burst of Prednisone. I will be doing IV Cefapime every 8 hours. It is an IV push which takes 20 minutes which is nice. I will get started on them tomorrow at some point. I will go to the hospital to get my port accessed and labs drawn before I start so we have baseline levels tomorrow. The Prednisone is 60mg the first day and then 20mg everyday for a week. I’m just ready for the pain to be gone so hopefully this does the trick. Well of course to feel better is always the goal. I will do IVs for 2 weeks and we will reevaluate then to see if I need a third week or not. I will have a clinic appointment in about 6 weeks for a check up. Oh yeah, I did my home spirometer Sunday night and it showed that my FEV1 was 32% (lung function) which is down from when I was last seen in clinic which was 36%. I will send them another set of lung functions mid week to see how I’m doing after a week of IVs. I’ll keep you all updated when there is something to update about….haha.

    Until next time…