Busy day today with all these appointments. First up was the 6 minute walk. My sats (oxygen) ran between 90-93 the whole time which means I didn’t need oxygen. That doesn’t mean I don’t need oxygen ever again. It means I had a decent day. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I finished IVs on Friday morning. It was a long 10 days of a 2 hour infusion every 8 hours. That’s 60 hours being hooked up to “the pole” in the 10 days, which doesn’t include all the breathing treatments, pills and time hooked up to oxygen. Yes, taking care of myself is a full time job. It is tiring at times and annoying most of the time. I do try and look at treatment time as a positive thing. It is sustaining my life and I get to update you all on this here blog while doing my treatments along with trolling Facebook. (more…)
CF Happens 