CF Happens

Quick update: My lung function is up to 33%/.94 L from 21% when I went into the hospital. We are happy with those numbers. I was hoping for 30% or over so I’m happy. I did however pull another muscle from coughing and it hurts so bad. I was surprised I did that well on PFTs with it hurting so bad. It hurts all the time but much worse and stabbing when I move and cough. I’m getting some pain meds for it so hopefully they will help take he edge off so I can do a treatment and not be in so much pain. My weight is down just a tad but that’s to be expected when fighting off an infection like I am. I’m still needing oxygen at times. I’m trying to go without while around he house but when I’m out and about I’m needing it. Also I’m sleeping with it as well. I will see clinic in 3 months unless something comes up. I do see transplant clinic next month so I will update after that. Thanks for always checking in on me.

Until next time…

Being in limbo sucks. I’m not sick enough for transplant just yet but I’m sick enough to be limited in what I can do. It’s like do I wish to get sicker so I can just get a transplant and be done with it, as if it’s that easy, or what. No I don’t want to get sicker but it’s bound to happen. It’s the nature of having cf. It’s a mind trip to say the least.

I’m having a hard time breathing today. Just feeling short of breath, so I’m hanging out on oxygen at 3L. I did go for labs this afternoon and they were good. My creatinine (kidney level) was good which is one of the major ones we keep an eye on with the colistin IV. I’ll have more labs done on Thursday before my clinic appointment that afternoon. I’m anxious to see what my lung functions will be. I don’t feel like they are great if I were to do them today but I’ve been wrong before. We shall see. I’ll update after my appointment.

Until next time…