2017 was a rough year. It had its ups and downs. In January I had transplant clinic which was good. I’m holding steady according to them. I see them, at Barnes Jewish in St. Louis, once a year to check me out. January also brought the 1st anniversary of my moms passing which was hard. I still miss her every day. The hole her death put in my heart will never be filled. I was on IVs in February, April, May, July, August which lead to being in the hospital because of my creatinine (kidney level) being elevated again. I had my gallbladder removed in September and did a week of IVs after surgery as a precaution. More IVs in November and then this whole virus/bronchitis/CF exacerbation or whatever it is in December that put me in the hospital for a few days. Man that’s a lot of IVs! (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I started having viral symptoms on the 22nd)…fevers, body aches, chills, horrendous cough, horrible chest pain from all the coughing, shortness of breath, etc. I finally had enough yesterday and had to go to the ER. There was no CF clinic for me to be seen in this week so ER it was. I tested negative for the flu which I was exposed to. My chest X-ray showed no changes and no pneumonia, all good there. Labs showed that my white count was elevated so my body was definitely fighting something. I was started on IV Zosyn and oral Levaquin. I didn’t get to my room until 9pm. I did lung functions while in the ER and my FEV1 was down 10% to 28%. That’s a decent drop. This virus or whatever it is a doozy. (more…)
CF Happens 