Well my 2018 has been shitty so far, literal and figuratively speaking. Not that you cared to know that. I got that virus around Christmas weekend and it seems to have found a happy home in my body. I have been super short of breath just walking and even sitting therefore I have been using my oxygen pretty much 24/7, unless it doesn’t reach where I’m going in the house. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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2017 was a rough year. It had its ups and downs. In January I had transplant clinic which was good. I’m holding steady according to them. I see them, at Barnes Jewish in St. Louis, once a year to check me out. January also brought the 1st anniversary of my moms passing which was hard. I still miss her every day. The hole her death put in my heart will never be filled. I was on IVs in February, April, May, July, August which lead to being in the hospital because of my creatinine (kidney level) being elevated again. I had my gallbladder removed in September and did a week of IVs after surgery as a precaution. More IVs in November and then this whole virus/bronchitis/CF exacerbation or whatever it is in December that put me in the hospital for a few days. Man that’s a lot of IVs! (more…)
CF Happens 