…IVs for 2 weeks then reevaluate how I’m feeling to determine if I need to continue to the usual 3 week (21 day) course. I will be doing the same antibiotic cocktail that I did last time in May/June which was Aztreonam (2g every 8 hours) and Amikacin (25 mg/kg (1250 mg total) every 24 hours). I have managed 3 months without IVs which is possibly the longest in awhile. I will be doing labs every Monday, Wednesday and Friday to monitor my creatinine (kidney function) and all the other normal stuff.
My lung functions were down 2% from last time. Today my FEV1 was 1.42/48%. Last time on 7/23/2015 my FEV1 was 1.50/50%. The time before that on 4/23/2015 my FEV1 was 1.39/47%. With that said, that isn’t much change really. If it were to have dropped 5% or more we would consider it more of a real change. This year I have been between 45% and 50%. I think it’s safe to say that is my baseline at the moment.
The nurse practitioner thinks my asthma is a big component at the moment. Yay me! Yes, my lungs are very rebellious and I am not too fond of that. When my asthma acts up it makes the bugs in my lungs get irritated and then they have a little or big party in there which require the big guns, aka IV antibiotics, to calm them down.
My weight was up 5 pounds! Holy moly! My BMI is where they want it. It is better for me to have a little extra weight so that when I get sick I have a reserve to pull from to fight. I burn even more calories breathing and coughing when I’m actively sick so that is the reason I need extra weight on my bones. Looks like I have that covered right now. haha
Here’s to 2 weeks of interrupted sleep, coughing up a lung or two, avoiding the sun, 4-5 hours a day of IVs, 3-4 hours of breathing treatments and possible grumpiness from the fore mentioned things.
Until next time…