I have been having back lung pain for 2 weeks so I called for a chest X-ray yesterday. I had a Telehealth with my CF doctor this afternoon. My X-ray was actually decent. With the pain, increased cough and more shortness of breath we decided that I will do IVs and a burst of Prednisone. I will be doing IV Cefapime every 8 hours. It is an IV push which takes 20 minutes which is nice. I will get started on them tomorrow at some point. I will go to the hospital to get my port accessed and labs drawn before I start so we have baseline levels tomorrow. The Prednisone is 60mg the first day and then 20mg everyday for a week. I’m just ready for the pain to be gone so hopefully this does the trick. Well of course to feel better is always the goal. I will do IVs for 2 weeks and we will reevaluate then to see if I need a third week or not. I will have a clinic appointment in about 6 weeks for a check up. Oh yeah, I did my home spirometer Sunday night and it showed that my FEV1 was 32% (lung function) which is down from when I was last seen in clinic which was 36%. I will send them another set of lung functions mid week to see how I’m doing after a week of IVs. I’ll keep you all updated when there is something to update about….haha.
Until next time…