Today was a busy fun filled day at UT hospital for 2 doctor appointments. Ok, it wasn’t so fun filled but it sure was a long one. It was about 7 hours today. I had a big lapse of time between appointments which I spent in the cafeteria having some lunch and watching a movie with my sound canceling headphones so I could actually hear the movie. Oh yes and of course answering emails, Fb messages and comments,etc. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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My day starts with lots of coughing which in turns means I need to do a breathing treatment and vest session ASAP to get as much junk out as I can and to get my lungs to calm down. Usually I’m coughing quite a bit throughout the night as well. I always try to “cough it out” to avoid getting up to do a treatment, but that doesn’t always work. I haven’t had uninterrupted sleep in so long. I can’t remember when the last time was. I have just learned to sleep in spurts. If you total the actual amount of time I am asleep at night it would be between 4-6 hours most of the time, between the coughing, possible breathing treatment to calm the coughing, bathroom breaks and tossing and turning. (more…)
CF Happens 