Today was a day that I have not looked forward to happening in my journey in life with CF. The day that oxygen was delivered to my house for 24/7 use or even only night time use. I have always thought that when this day happened it meant “I was getting sicker” and that my life was on a downward spiral of CF progression. In my life there have always been milestones that have signified different steps of CF progression to me. Not everyone thinks the same as I do, this is just me. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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After 16 days in lock up I am home. It was a long 16 days. The first 10 or so days of my stay I was sick enough that I didn’t care that I was there. Yes of course I wanted to be with my family at home but I knew I needed to be there to get better. On day 7 I had a bronch which was followed by days of a lot of pain and major tightness and wheezing in my airways. So needless to say my asthma went crazy and I had to put up with it and it was NO fun! It took upping prednisone to 80mg per day (40mg in the AM and 40mg in the PM) to get the tightness and wheezing to lessen to a tolerable state. (more…)
CF Happens 