• (This post is bound to be all over the place so bear with me) One month ago today my mom left this earth.  I feel like I have been treading water for the last month just trying to stay afloat.  I am an emotional mess at times when the memories flood in or something triggers the overwhelming feeling of not having my mom here anymore.   (more…)

  • Today was a day that I have not looked forward to happening in my journey in life with CF.  The day that oxygen was delivered to my house for 24/7 use or even only night time use.  I have always thought that when this day happened it meant “I was getting sicker” and that my life was on a downward spiral of CF progression.  In my life there have always been milestones that have signified different steps of CF progression to me.  Not everyone thinks the same as I do, this is just me. (more…)