CF Happens

Sometimes in life, CF happens…pun intended.

recent posts

  • Another round of IVs down

    57 doses of Aztreonam, 19 doses of Amikacin, 133 Saline syringes (not including the extras for blood draws and reaccessing), 57 Heparin syringes, 2 Huber needles, 3 dressing changes…that’s what I have accomplished over the last 19 days plus tomorrow morning.  Tomorrow morning is my last doses of IVs and tomorrow afternoon is my last day of labs.  I will be needle free as of 1:15pm tomorrow afternoon!!  I’m very ready to be free from the needle and dressings that’s for sure.

    Now for the million dollar question, “Do I feel better?”  A lot of people think that after I do IVs I’m “better” as in not sick anymore and that is not the case.  Yes, I am better for the time being and the goal is to stretch the time between IVs as long as possible.  IVs are inevitable in my life so I have to do what I have to do to keep on keeping on.   (more…)

  • 9 days down

    Nine days of IVs down…?? more days to go.  When the port is accessed you are supposed to change the needle weekly.  It’s not the end of the world if it doesn’t get changed on the exact day.  It is also good to give your skin a break from the tegaderm that covers your needle.  The major perk is being able to take a REAL shower which means not having to sponge bathe and wash my hair over the side of the tub.  I deaccessed my port this afternoon after my 2pm dose.  I was due to change my needle on Friday but I wasn’t motivated to do it.  Then Saturday I slept most of the day.  I just finished with my real shower and I’m now doing a treatment.  When I’m finished with my treatment I’ll reaccess my port in time to do my next dose. (more…)