• Nine days of IVs down…?? more days to go.  When the port is accessed you are supposed to change the needle weekly.  It’s not the end of the world if it doesn’t get changed on the exact day.  It is also good to give your skin a break from the tegaderm that covers your needle.  The major perk is being able to take a REAL shower which means not having to sponge bathe and wash my hair over the side of the tub.  I deaccessed my port this afternoon after my 2pm dose.  I was due to change my needle on Friday but I wasn’t motivated to do it.  Then Saturday I slept most of the day.  I just finished with my real shower and I’m now doing a treatment.  When I’m finished with my treatment I’ll reaccess my port in time to do my next dose. (more…)

  • …IVs for 2 weeks then reevaluate how I’m feeling to determine if I need to continue to the usual 3 week (21 day) course.  I will be doing the same antibiotic cocktail that I did last time in May/June which was Aztreonam (2g every 8 hours) and Amikacin (25 mg/kg (1250 mg total) every 24 hours). I have managed 3 months without IVs which is possibly the longest in awhile.  I will be doing labs every Monday, Wednesday and Friday to monitor my creatinine (kidney function) and all the other normal stuff. (more…)