Today was an early start. I had to be at the hospital for labs early because we ha plans to go to Dollywood the amusement park and wanted to be there when it opened at 10am. So I made to the hospital for labs, stopped for gas on the way back and made it back home by 8:05 am. We made it to Dollywood around 10:15 am, they opened at 10am. Our tradition in our family is that we have a family day and/or night before one of us goes away for an extended period of time. My step-son is heading to his mom’s for the summer so that meant a family day was in store. What I learned today was 1.) handicapped parking when at an amusement park is a life saver 2.) you don’t realize how much lung power you use while riding roller coasters until you are out of breath while riding one 3.) long lines for rides give you time to calm your breathing and regain control of it 4.) your inner thighs get sore from “holding on” and finally 5.) I was right when I said that I could see a lot of coughing from laughter in my day. We sealed family day by playing a game of Sequence after dinner. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I overcame the lung pain and it finally dulled by Sunday to where it only really hurt if I was taking a deep deep breath. My morning have been pretty bad. Mornings in general are my worst time of the day as far as coughing and sputum production go. Sitting up after laying flat during the night stirs up all of the junk that has settled and the coughing starts. I have always said that mornings are NOT my friend. If I had a way to skip them I would. It hurts my lungs/chest and head along with making me out of breath. I have to catch my breath and try not to cough so I can walk to the office to do a breathing treatment without running into walls or even peeing myself when trying to walk and cough at the same time. Yep, that’s the real stuff right there. (more…)
CF Happens 