I’m on day 11 with 10 days left of a 21 day IV course. My labs (Amikacin levels, creatinine and BUN) have been great! I have steered clear of ibuprofen and done my best to stay hydrated. With all of that said, I am feeling “better.” I put better in quotes because that is a term I use sparingly. It is hard for me to say I’m “better” because I don’t want to jinx myself. I also want people to understand that “better” in my CF vocabulary is more of a “better than I was” and/or “better for now.” I don’t say that in a woe is me or with a grim tone at all. It is to show the reality of my life with CF. I embrace every “feeling better” day and do everything that I can on those days. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Today was an early start. I had to be at the hospital for labs early because we ha plans to go to Dollywood the amusement park and wanted to be there when it opened at 10am. So I made to the hospital for labs, stopped for gas on the way back and made it back home by 8:05 am. We made it to Dollywood around 10:15 am, they opened at 10am. Our tradition in our family is that we have a family day and/or night before one of us goes away for an extended period of time. My step-son is heading to his mom’s for the summer so that meant a family day was in store. What I learned today was 1.) handicapped parking when at an amusement park is a life saver 2.) you don’t realize how much lung power you use while riding roller coasters until you are out of breath while riding one 3.) long lines for rides give you time to calm your breathing and regain control of it 4.) your inner thighs get sore from “holding on” and finally 5.) I was right when I said that I could see a lot of coughing from laughter in my day. We sealed family day by playing a game of Sequence after dinner. (more…)
CF Happens 