Where to start…..I finished the oral Cipro and prednisone on Friday the 23rd. Still wasn’t feeling great, although the prednisone helped a ton by opening up my reactive airways making me not so tight chested and wheezy. Tuesday, the 27th, I started with noticeable lung pain in the upper right lung. It hurt to cough, good luck not doing that one, and made the vest uncomfortable to use during treatment times but I powered through it because I have to get that junk out. The lung pain continued yesterday and today. I called my clinic to ask for a chest x-ray to make sure there wasn’t anything blatantly obvious on it as to a reason for the pain, like a major infiltrate (junk/blood stuck in there), infection, pneumonia, collapsed lung (partial, considering I was still able to breathe decently) or fractured ribs. I figured it was just do to the raging pseudomonas infection I have going on at the moment. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Today was clinic day. If there is one thing CF clinic has taught me over the years, it’s patience. I am used to it so it is no big deal but others would flip if they had to sit in the doctors office for 2.5 hours or more.
I haven’t been feeling the greatest as you know since I started oral cipro and prednisone. I have been on both for 11 days. I have 2 days of prednisone left and 3 days of cipro left. Today’s clinic wasn’t the greatest. First stop was lung functions which were down from last time. This time my FEV1 was 1.37 / 46%. Last time I believe they were 1.47. They aren’t down a ton but they seem to be taking a slow decline. Gotta love having a progressive disease that you have no control over. (more…)
CF Happens 