Freedom is being needle free!! Well I know there is much more to freedom than that but right now that is my freedom. I finished 4 weeks, actually 29 days, of IVs yesterday. It is so nice to be free from IVs. Now I know you are asking the million dollar questions, “How do you feel? Do you feel better?” Better is a relative term. I feel “better” in the big picture. The IVs take so much out of me, wear me out and drain me. Having IVs every 6 hours means that you don’t get much sleep or at least you only get to sleep in spurts. It will take me a few days to a week to get back to somewhat normal feeling in the sense of not being so drained, or that is my hope. As far as my lungs and how they feel, they feel better. I am not coughing as much but still having my coughing fits and mornings are the worst. Mornings are the worst and will always be the worst because when I lay down to sleep all of the junk in my lungs settles on the lung wall. When I toss and turn or sit up it all starts to move and irritates my lungs, triggering coughing fits. With that said, if you ever call me in the morning and I am still in bed I may not answer it because I will start coughing and it will not be a productive conversation and coughing in someones ear and not being able to talk is not one of my favorite things to do. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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There are many people that are very angry at CF for what it does to a person. My personal opinion is don’t waste your energy on being mad at a disease you have no control over. Let me stop right there and explain. Yes, you have some control over your symptoms and how you take care of yourself BUT in the big picture you have no control of what the outcome is. Death is the result of life for everyone. People with an incurable disease will most likely meet that end result sooner than others. That doesn’t mean that you need to waste precious time worrying or being mad at something you have no control over. It’s like being mad because you have to wait in a line. Where does being mad get you? Does it make the line move faster? Does it get you to the front of the line? No. If anything it will take longer (or seem that way) because you are bent out of shape over something you have no control over. There are many scenarios I could use to demonstrate the same principal but I think you get the idea of what I mean. (more…)
CF Happens 