CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Medicine balls!

    zosyn

    Medicine balls=Happiness, Joy, Freedom!!!!!  I opened my IV supplies that got delivered today and much to my surprise my Zosyn was in a medicine ball and not a bag for gravity flow.  What are medicine balls you ask?  Well they are one of the best medical inventions ever!  It is basically a balloon inside of a ball like thing that has the medicine inside.  You hook it up, unclamp the tubing and let it go.  The balloon that has the medicine inside slowly deflates pushing the medicine in.  It takes 30 minutes to infuse then you flush it off with saline and heparin.  You are good to go until your next dose, which is every 6 hours in my case with Zosyn.

    I just wanted to share my excitement of finding out that I would not be stuck to the IV pole 4 times a day.

    Until next time…

     

     

  • 14 days of IVs down…

    I started IVs at home on August 19th.  Today marks 14 days and I don’t feel any better.  I don’t feel horrible but I also don’t feel great in general.  I called my nurse to tell her that I was not feeling any better and that I think we need a med change.  I had to be at the hospital at noon for my weekly labs so when I was finished I stopped by clinic to see what she found out.  The verdict is that we are stopping the Aztreonam which was every 8 hours, staying on the Levaquin every 24 hours and adding Zosyn which is every 6 hours.  I have been on Zosyn many times.  The bummer about being on Zosyn is that it is every 6 hours and has to go in by gravity.  That means I am stuck to the IV pole 4 times a day for 30-45 min each time, not to mention the 2 hours it takes the Levaquin to infuse.  This means that I am not as mobile as I like to be when I’m on the medicine balls.  I will do what I have to do to feel better, so it is what it is.  Here comes even more jacked up sleep schedule.  Naps will be my friend, as if they aren’t always but more so right now. (more…)