I started IVs at home on August 19th. Today marks 14 days and I don’t feel any better. I don’t feel horrible but I also don’t feel great in general. I called my nurse to tell her that I was not feeling any better and that I think we need a med change. I had to be at the hospital at noon for my weekly labs so when I was finished I stopped by clinic to see what she found out. The verdict is that we are stopping the Aztreonam which was every 8 hours, staying on the Levaquin every 24 hours and adding Zosyn which is every 6 hours. I have been on Zosyn many times. The bummer about being on Zosyn is that it is every 6 hours and has to go in by gravity. That means I am stuck to the IV pole 4 times a day for 30-45 min each time, not to mention the 2 hours it takes the Levaquin to infuse. This means that I am not as mobile as I like to be when I’m on the medicine balls. I will do what I have to do to feel better, so it is what it is. Here comes even more jacked up sleep schedule. Naps will be my friend, as if they aren’t always but more so right now. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I have had people ask me how I access my port for IVs and what it entails. I decided to record myself accessing my port last night. Sorry it is a bit long because I couldn’t get my gloves on. They are sterile so I can’t just throw them on. I have to be careful not to touch the outside of the gloves.
I do use EMLA numbing cream before accessing my port. I put a glob of the EMLA on top of my port site and cover it with a small tegaderm for at least 30 minutes but closer to 45 minutes. I cleaned the EMLA cream off right before recording. I will answer some of the questions that might be going through your mind…. (more…)
CF Happens 