May is Cystic Fibrosis Awareness month. I will be sharing things about CF that you may or may not know throughout the month. I will start with this little tid bit to make you come back for more. I started IVs at home yesterday, what a way to celebrate CF awareness month huh. I had to access my port so that I could get started. Here is a pic of what the process entails. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Compliance is a big part of living with CF. I don’t know of any CFer that hasn’t had a time where they slacked off and didn’t do all that they were supposed to. Most of the slacking comes during the teenage years to early twenties. It is hard to see all your friends living a normal life. They don’t have to take time to do breathing treatments or have to take medicine every time they eat or go in the hospital. You want nothing more than to be a “normal” kid/person. CF gets in the way of a “normal” life. CF is my “normal.” It is all I know but that doesn’t mean that I haven’t dreamt of what it would be like to not have to do breathing treatments or be attached to an IV or to not take medicine every time I eat and all the other things that come with the CF territory.
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CF Happens 