This is a year of many “firsts” for our family. My grandma (mom’s mom) passed away in April of this year. This has meant that we had our first Mother’s Day, Father’s Day and now comes the holiday season. This is going to be an adjustment for all of us. Our family tradition has always been that we go to grandma and grandpa’s Christmas morning. We eat lunch, open gifts and hang out and watch football and/or good ol Christmas movies that play over and over on TV. It is all about family time. Over the last few years Grandma couldn’t handle making the big meal for all of us so we divided things up and made the meal. She hated that she got worn out when making the meal but we made sure that the meal still went on.
(more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
-
-
Guilt. I know I talked a little bit about it in the book but I wanted to revisit it. I may repeat myself, ok I know I will just go with it. haha
As someone with CF you feel guilty for your life (sickness/disease) taking time away from others. I will speak for myself, I feel bad when someone has to stop what they are doing (everyday life) and do something for me that is due to CF or CF related. For instance when people come see me when I am in the hospital I feel bad for them squeezing that in their busy day. I never want to be a burden on people. I never want people to feel sorry for me. I never want people to stick around because they feel bad for me. I never want people’s lives to stop when mine has too. I want people to continue on with their normal everyday life. I have no choice in the matter, my life has to be put on hold from time to time. Others have the choice. Don’t get me wrong I am so thankful when people are able to do things to help me out when I am in the hospital like making sure my bonus son is taken to all his activities when my husband is unable. I appreciate everything everyone does for me and my family with all my heart, it is just hard to accept needing help. I am a very independent person and really dislike it when I am not able to do things for myself. I have had to learn to allow people to do things for me which is very hard for me.
(more…)
CF Happens 