CF Happens

Sometimes in life, CF happens…pun intended.

recent posts

  • Chapter 10 – Family & Friends

    “Playing the Cards Life has Dealt”

    My family is great.  I love them so much.  I have had a hard time letting my family into the true side of things.  I know they have their own range of emotions about me having CF and how it makes them feel.  I know they are scared about it all in their own way.  The bottom line is CF and all that goes along with it sucks.  When I was younger I was more vocal about how it sucks just for the simple fact that I was a rebellious teenager.  The older I got the more I have tried to “hide” the reality of it all from people.  I would like to write to my family now:

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  • Chapter 9 – Memories & Stories

    “Playing the Cards Life has Dealt”

    I was the poster child for the Cystic Fibrosis Foundation for 1985.  While poster child for the CFF (Cystic Fibrosis Foundation), I met Frank Deford (father of Alex Deford whom a movie was made about her life with CF), local celebrities and professional athletes.  I was interviewed by the local paper a few times, attended CFF fundraisers and much more.  There is a CF Fundraiser Ball every year and when I while poster child I was able to attend.  There I met many famous people and got a lot of attention.  It was a way to let people see what CF looks like in real life and not just the foundation that people were giving to.  The poster child/children showed the faces of CF and educated and spread awareness about CF.

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