CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • Yay for good clinic appointments

    Today I had CF clinic.  It was an all around good visit.  Sometimes I hate saying that I feel “good” because I know it won’t last forever.  First up was lung functions.  My FEV1 was 35%/.98L which is pretty much the same as last time.  My weight was stable at 123 and my pulse ox was 95%.  I met with the whole team of folks and was sent on my way.  Can’t complain there.  The pulled muscle I had FOREVER is finally better.  Short and sweet update!

    Until next time…

    Still fundraising for transplant at www.COTAforShannonM.com.  Thank you for everyone that has already donated, it is greatly appreciated.

  • Pulled muscle yet again

    My pulled muscle from the the beginning of April was getting better and then BAM I have another one. This one is worse than the last. It’s on the same side (left side). This one is just above the other one and radiates under my armpit around to my back. It hurts so bad to cough. I woke up around 3:30am coughing and in pain this morning. I had to do a breathing treatment to attempt to calm my cough enough so I could get comfortable enough to go back to sleep. I managed to do that. The pain could also be an infection brewing which I really hope it’s not because I have a very busy summer. I can’t afford to be in the hospital and don’t want to be on IVs.

    Until next time…