Hello all! I have been in a slump when thinking about transplant stuff. It is just so overwhelming. I feel like when I was writing “my book”/my life story (link at the top of the blog page for all chapters) I would write like crazy and then take time away from it for awhile then go back to it. That’s how I feel about thinking/doing things for transplant because it is so overwhelming. There are so many logistics that go into it that it makes my head spin. Fundraising is just one part of the puzzle and it’s a big one. Funds raised will help with housing in St. Louis after transplant, house bills in TN while away in St. Louis, food, parking, hotels, hospital bills, medicine copays and much more. There are things that will pop up that we didn’t even think of I’m sure and we just want to be prepared as much as possible. We will have to be dealing with me, my health and recovery and don’t want to worry about the financial part of things. I just want to thank you for all of your support and love over the years. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Hello friends and family! Seems like I was just here updating you all. Well I am not feeling good again after only 2.5 weeks off of IVs. I started with the dry unproductive cough again which was what happened before I was hospitalized at the end of March. Along with achy and my chest is sore from all the coughing. Plus I still have the pulled muscle on the left side of my chest which seems worse the last few days. It hurts so bad to cough. I’ve been trying to brace myself when I cough but that doesn’t even help. It’s like something is stabbing me every time. (more…)
CF Happens 