Hello friends and family! Seems like I was just here updating you all. Well I am not feeling good again after only 2.5 weeks off of IVs. I started with the dry unproductive cough again which was what happened before I was hospitalized at the end of March. Along with achy and my chest is sore from all the coughing. Plus I still have the pulled muscle on the left side of my chest which seems worse the last few days. It hurts so bad to cough. I’ve been trying to brace myself when I cough but that doesn’t even help. It’s like something is stabbing me every time. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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Quick update: My lung function is up to 33%/.94 L from 21% when I went into the hospital. We are happy with those numbers. I was hoping for 30% or over so I’m happy. I did however pull another muscle from coughing and it hurts so bad. I was surprised I did that well on PFTs with it hurting so bad. It hurts all the time but much worse and stabbing when I move and cough. I’m getting some pain meds for it so hopefully they will help take he edge off so I can do a treatment and not be in so much pain. My weight is down just a tad but that’s to be expected when fighting off an infection like I am. I’m still needing oxygen at times. I’m trying to go without while around he house but when I’m out and about I’m needing it. Also I’m sleeping with it as well. I will see clinic in 3 months unless something comes up. I do see transplant clinic next month so I will update after that. Thanks for always checking in on me.
Until next time…
CF Happens 