Hey all! Well the oral antibiotics didn’t do anything and I was getting worse. I was having a hard time maintaining my oxygen saturation. I was dropping into the 80’s when moving around doing anything. I have stayed hooked up to oxygen and gotten up to the lower 90’s when on 4 liters of oxygen. I was originally on 2.5 liters and had to bump it up because I couldn’t get my sats up. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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As I sit here doing a breathing treatment, which includes the vest along with DuoNeb, Budesonide and Pulmozyme, I think how stupid all of this is. I know it’s what I have to do but the vest makes it so hard to breathe when I already don’t feel like I can get enough air in. Let me rewind a minute…I called my doc for a prednisone burst/taper for my severe tightness and wheezing. I finished my taper of prednisone yesterday. I’m not feeling better so I called back and asked for antibiotics. I started oral Bactrim and Levaquin yesterday. I have a CF clinic appointment on Thursday so we shall see how I am then. (more…)
CF Happens 