Sometimes in life CF (Cystic Fibrosis) happens…pun intended
Today is National Donor Day! It’s a day to remember those that made the ultimate sacrifice and were donors. They changed someone’s life forever with their gift. 
If you aren’t a donor I urge you become an organ donor. You can go to http://www.organdonor.gov to register!
Until next time…
Today was originally a regular follow up but became an IV check up. All looks good. My weight is down a little from all the antibiotics wreaking havoc on my gut. My FEV1 was down a smidge to 34%/.98L but still around my baseline. I also had a dexa scan (bone density). I have a dexa every 2 years to check my bone health. In 2016 my scan showed osteopenia which is a step before osteoporosis. It just means that my bones are a little weak. With CF I don’t absorb nutrients normally because of my bad pancreas therefore I have to take vitamin and calcium supplements. (more…)
CF Happens 