CF Happens

Sometimes in life CF (Cystic Fibrosis) happens…pun intended

recent posts

  • It’s my birthday!!

    Whoop Whoop!!!  I made it to 39!  When I was born the life expectancy was 12 years old. I have a little ways to get to the new life expectancy of 47.5 (I think that is what it is now, it keeps changing).  I got a great birthday present of getting off IVs yesterday.  It was a long 3 weeks of antibiotics.  I am feeling pretty much the same which I will take because I am not worse.  Of course I would like to be better but now since my lung function is low I don’t get much bump from antibiotics but I maintain.  I have a clinic appointment next week.  I’ll update after that appointment to let you all know what my lung functions look like and what the doc says.

    Until next time…

  • Changing IV antibiotics

    I’ve been on IV’s for 13 days with no real improvement.  I called my nurse to discuss changing antibiotics since I’m not feeling any better.  We decided on IV Zoysn every 6 hours and oral Bactrim three times a day.  I usually get an upset stomach and (TMI) loose stools with these two meds so I will need to take probiotics to try and help that.  I will be on these two new antibiotics for two weeks with the hopes that I will start to feel better.  We had to look at my sensitivities from my sputum culture to figure out what drugs should work and these two were the winners.  Oh joy!

    Until next time…