Well I survived the trip…hahaha. I had a great time with my family and celebrating my great uncles 90th birthday. We went to 7 or 8 beaches, I lost count. Another one of my must haves when in Hawaii is shave ice, we got shaved ice 5 times, yummy! No it is not a snow cone…it’s completely different. It is shaved ice from an ice block, not ice pellets. Anyway that is your Hawaiian lesson for the day…haha. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I am set to leave for Hawaii in 12 days. I have not been feeling the greatest over the last few weeks. My cough has increased and gotten “juicy/nasty” sounding, plus more productive. I have been waking up in the middle of the night coughing as well. I want to be able to enjoy Hawaii and I have 12 days to do something about it.
So I waved the white flag. I called my nurse to see about IVs or something to get me to as “tip top” shape as possible before I go to Hawaii. They called me in for lung functions. My FEV1 was 38%/1.09L which is basically my baseline (meaning my normal). Just because my numbers are stable doesn’t mean that nothing is wrong considering my symptoms.
I’m starting IVs tomorrow morning for a 10 day course to get me something before I leave for Hawaii. I have labs tomorrow along with Monday and Thursday of next week. I’m starting IV Avycaz every 8 hours along with IV Colistin every 12 hours.
Here’s to 10 days of IVs doing the trick! Please pray that they do the trick so I can enjoy my time in Hawaii with my family.
Until next time…
CF Happens 