CF Happens

I am set to leave for Hawaii in 12 days.  I have not been feeling the greatest over the last few weeks.  My cough has increased and gotten “juicy/nasty” sounding, plus more productive.  I have been waking up in the middle of the night coughing as well.  I want to be able to enjoy Hawaii and I have 12 days to do something about it.

So I waved the white flag.  I called my nurse to see about IVs or something to get me to as “tip top” shape as possible before I go to Hawaii.  They called me in for lung functions.  My FEV1 was 38%/1.09L which is basically my baseline (meaning my normal). Just because my numbers are stable doesn’t mean that nothing is wrong considering my symptoms.

I’m starting IVs tomorrow morning for a 10 day course to get me something before I leave for Hawaii.  I have labs tomorrow along with Monday and Thursday of next week.  I’m starting IV Avycaz every 8 hours along with IV Colistin every 12 hours.

Here’s to 10 days of IVs doing the trick!  Please pray that they do the trick so I can enjoy my time in Hawaii with my family.

Until next time…

My husband will be retiring from the US Air Force this December after 20 years of active duty service.  It is a scary and exciting thing all wrapped up in one.  The transition to the civilian world is definitely an adventure with the civilian job hunt and things being up in the air, like will we have to move for a job.  In that sense it’s somewhat like military life…haha.   (more…)