What to do when you are woken up and you can’t get back to sleep….you get up and blog about what is on your mind. Friends and family have been on my heart and mind for a while. The sicker that I get the more I think about them and what they may be feeling. Family is “stuck” with me but that doesn’t mean they have to deal or even claim my CF. They can love me from afar and still be my family even if they don’t want to acknowledge my CF or even remember. It is easy to ‘forget’ that I have anything since we are states away from one another and we don’t see each other daily or even weekly or monthly, sometimes going longer without talking to each other as well. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I haven’t been feeling the greatest for over a week. I’ve had an increased cough along with increased sputum (what I cough out in case you don’t know what that is). I have been having trouble sleeping. I also have been more worn out and more short of breath and needing to use my oxygen more often. I called my CF nurse to ask for IVs and I got an appointment with the doctor instead. (more…)
CF Happens 