Today is a happy day because we get to celebrate me, of course! Yes, I LOVE getting older because it means I kicked CFs butt for another year. On the flip side it is hard day without my mom here. I thought after last year this year would be easier. Considering I was in the hospital last year and it was the first one without mom here. I have been doing nothing but crying most of the day thinking about mom. She would call me at 3:05pm, the time I was born, on my birthday every year. There were some years that she couldn’t wait that long and would call in the morning and then call back at 3:05pm. I miss that phone call of her singing happy birthday to me. We were VERY close. I had plans to surprise her on her birthday last year in April but obviously that didn’t happen. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I had an MRI on December 22nd and didn’t hear anything until after the holidays. The results are that I have a minimal C6-C7 impingement (pinched nerve) in my neck. There was nothing of significance in my upper back to give reason for my lung/chest pain on the MRI. The lung/chest pain is most likely from pulled muscles from coughing so much and so forcefully. I am awaiting a referral to a neurosurgeon for the pinched nerve in my neck. I have had the pain in my neck along with headaches for about 6 months. I’m happy to have an answer about my neck but bummed that we really don’t have any concrete answer about my lung/chest pain. The lung/chest pain is slightly better, especially the fractured rib site, than it was when it began. Now it seems that the rest of my muscles in my chest are sore from compensating for the pain which is no fun. I see a neurosurgeon on a February 2nd about the pinched nerve. More on that later.
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CF Happens 