I spent the day at the hospital with 2 different appointments. First up was my CF clinic check up from my 21 day course of IVs. My main complaint today was the continued pain in my right side. My appointment was at 9:30am and I was finished at 12pm. A lot of people complain about waiting at doctors offices. I, on the other hand, am used to it. It is par for the course when you have CF (or any other chronic illness). I respect that my doctors and nurses take their time with their patients because that means they will give me all the time I need when it is my turn. My appointments are also long because I have to see other people during the visit, i.e.; respiratory therapist, dietitian, social worker, nurse, nurse practioner and/or doctor. I am now a professional “waiter” by this stage in my life. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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IV antibiotic update: Last Thursday (the 1st) I had my regular labs drawn. I received a call Friday morning to stop the Colistin and “drink enough to float a boat” because my creatinine had gone up to 1.2. That meant that my kidneys were starting to “get hurt” by the colistin since it is filtered through the kidneys. We don’t need any more kidney injuries like we had a year and a half-ish ago when my creatinine went way up to 6.9! It is better to stop it before it gets to bad. I had my labs rechecked on Monday (the 5th) and my creatinine was back into normal range. I continued the cefapime every 8 hours for the last 7 days of the 21 day regimen. (more…)
CF Happens 