ENT check up and IV update

I just got back from the ENT. My sinuses looked “fabulous” in regards to little to no polyps and all the green mucus yuck. However I have some MAJOR allergy issues going on.  He said that my sinuses look blue.  I thought that was impressive.  I guess the blue is from all the irritated allergy stuff up there.  I am in East Tennessee which happens to be the allergy capital of the U.S.  You can see the pollen on everything.

I am adding claritin to the singular that I already take. They work differently on the histamine aspect of things. He said, “I know we don’t like to use too much benadryl in CF patients but I think you would notice a big difference.” So I think I will take benadryl before bed tonight. I already took a claritin today and will continue it.  He said to give it 5 or so days and I should be able to tell a difference.  If I don’t then I will try another allergy med.  I told him that I skin tested negative to everything. He said, “so did I but I am deathly allergic to cats. If I walk into a hotel room where a cat was I will end up in the ER. They tested me 2 years later and I showed positive on some things and my blood work was wacky.”

I feel vindicated after the appointment because even though I tested negative to everything I knew there was something causing all of this stuff.  I knew I wasn’t crazy.  The irritation in the sinuses can and is most likely irritating my lungs, CF and asthma.  I told the doc that I didn’t do the rinses 3 times a day like it said but did at least once a day. He said, “I say 3 times a day but will be tickled pink if you do it once a day.” I said, “score!” My old ENT (back in KC) would freak if I didn’t do everything exactly how he said and was very demeaning in the way he spoke to me, hence the reason I didn’t go back to him! This doc is goofy and I love it!  

I can now go to every few days on the antibiotic/steroid rinses and if I have a flare up of nasty sinus junk I will increase them. I have not been able to smell since I started the rinses.  I asked him if my loss of smell is due to the rinse and he said yes it’s a side effect.  He said by decreasing the frequency I should regain my smell. With that said, my husband took my car when I got home and came back in and said, “what did you have with onions?” I said, “tacos…sorry I didn’t smell anything.” Then he said, “did you Lysol the house today?” I said, “yes, our beds and pillows.” I can’t smell ANYTHING!!!! So weird!  It is so weird to not be able to smell things.  I guess it is a blessing in disguise when it comes to flatulence, bowel movements and stinky boys.  

IV update:  I am on day 10 of IV cefapime and oral cipro.  I will be done with IVs on the 14th.  I will be seen in CF clinic on the 16th.  My lung functions from March 31st were FEV1 1.37/46%.  That is pretty stable.  Crappy stable but still stable.  Interested to see what they will be on the 16th after 14 days of antibiotics and starting the claritin.  I am also taking a few days off of Pulmozyme (inhaled to help thin the mucus to make it easier to get out) to see if it is a possible trigger for my asthma.  I have been on it since it was in the drug study stage many many years ago, 1996 maybe.  It seems that my asthma has been playing a large part in how I feel and how my lungs are reacting to CF stuff.  All of my twice weekly blood work has been fine.  Thank you for checking in and all of your support!

Don’t forget to order your Shannonigans gear and to share it with all of your friends and family!


Until next time…

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