I am finally sitting down at a cleared off desk in order to find the keyboard to post. haha It’s amazing how much stuff piles up when you are gone for 9 days and the family is still here. It’s not like you were on vacation!
Here is what “getting settled in” looks like: (be prepared for rambling) My husband is awesome about getting all of my bags out of the car and unpacking it all without me even thinking about asking him (huge help). From there a few piles are created of things he doesn’t know where I want them. Go through the pile of mail that my husband leaves to make sure nothing gets throw out that shouldn’t have and that I don’t miss anything, put away all the meds that were pick up from the Pharmacy that were called in from the hospital and getting ready for next doses, getting IV supplies situated and ready for the next dose, finding a place for the new meds that I have been tasked with, figuring out what meds are do when because timing of things always get screwed up in the hospital, some things are changed from IV to oral or from one type to another, They send meds to the pharmacy that are unnecessary like Benadryl…umm I think I have that one covered thanks for making me pay the pharmacy price for it (didn’t realize what all we were picking up because there was like 7 different things and by then we said sure whatever just throw it in) Sometimes it feels like you are cracking the Da Vinci code to get it all figured out and situated. Needless to say I had to clear the desk in order to do a treatment and have a work space to go through things and get the office somewhat back to organized.
I can’t thank my fantastic husband enough who has taken care of all of the stuff I usually do for the last 9 days here at home and the teenager that dwells here also, on top of everything at work.This last 10 days have been very busy at work for him with little free time. He never complains about it. He does everything he can in the amount of time his eyes will allow him to stay awake after such longs days and weeks. I can’t even express how much I appreciate him and all he does for me and the kids.
Now for the actual health/parole update for the evening. I signed my parol papers around 4pm. There were 2 necessary stops I had to make on my way home. These eye brows of mine were out of control and needed to be tamed. I then had to drop off one script off at the pharmacy because it couldn’t be sent electronically. I came home and the puppies were so happy to see me! They wouldn’t stop kissing me! I have a video of the reunion, maybe I’ll try to get it loaded here at some point. I went to the bathroom and while I was sitting there I began coughing and I knew what kind of cough it was. It was the blood kind which means it’s coming whether you want it to or not. It lasted about 15 min and was only about a tablespoon or 2. It was hard to measure because some was in tissue and some was in a spit cup. So that wasn’t the welcome Home I wanted but it died down. I will be watching it. Coughing up blood is never fun nor is it ever not scary to some extent. I’m thankful my husband is here in case something were to happen he could act fast.
So with all of that rambling out of the way…haha Sorry my mind is kind of all over the place tonight and that’s just how it plays out a lot of times. The med changes that I came home are as follows: nebulized Formoterol (Perforomist) which is a long acting bronchodilator to keep the airways open longer and nebulized Budesonide (Pulmicort) which is corticosteroid to help with the airway inflammation. Those 2 have added about an extra 15-20 min on my treatment time, making my total treatment time around 45 min. I have to do the 2 new ones listed above along with DuoNeb and Pulmozyne twice a day. Then 2 more treatments of just DuoNeb in between all of that. So as you can tell I don’t have time to have a life if it doesn’t involve smoking my pipe (nebulizer) and shaking with the vest 4 times a day. It’s amazing that some days I even have time to do other things but somehow I figure it out. haha
I think that is enough for now. Looking forward to my bed with my husband and puppies all cuddled up in it already. Thank you so much for all of your love, support and prayers for our family. They are greatly appreciated.
Until next time…