I moved up my CF clinic appointment from Thursday to today because I am still not feeling well. My lung functions are way down which is no surprise to me because I can feel it. Here is what the numbers look like…warning they aren’t pretty…
October 22, 2015 – FVC (lung volume) 2.88L/81% and FEV1 (amount of air forced out in the first second) 1.58L/53%
Today January 18, 2016 – FVC 1.82L/51% and FEV1 0.97L/33%
So you can see that I had an entire liter and 30% decline in my FVC (lung volume) AND a decline of a little over a half of a liter and 20% on my FEV1. I defiantly can tell that I am that low because I get short of breath doing nothing.
Treatment plan: Starting IV Zoysn and oral Cipro along with a prednisone burst tonight. If I am not better in a week or two I will be seen and we will reevaluate with a possible admission to get things sorted out. I just want to feel better! It’s been since mid October since I felt decent.
Short and sweet update for now. I’m going to lay down. I’m worn out from going to Walmart and the doctor today. I’ll update more later.
Until next time…
Ugh so sorry
Oh Shannon, I am so sorry you are struggling so much. I know how hard it is to continually fight but be knocked down further and further all the while.
I am thinking of you and I will pray for healing and comfort.
Hang in there kiddo!!! Love, Carolyn
Shannon you are in our prayers daily I love to read your posts
Love ya