• We are heading out to St. Louis to Barnes Jewish Hospital for the week of transplant evaluation.  With that comes a lot of emotions as you can imagine.  I am excited, nervous, anxious and ready to breathe.  Not that they are going to fix me right up while we are there but I’m ready to get some answers and find out where I am on the transplant spectrum.   (more…)

  • What if I didn’t have CF?  That is one open-ended question.  This topic for this post has been on my mind for a while now.  I just didn’t know how to go about writing it and then there was the whole coughing up blood thing that got in the way.

    The “what if I didn’t have CF” question/statement goes way back to childhood.  I think I am just going to start to list things and elaborate when needed. (more…)