• My first night in lock up….in CCU/ICU was as expected, NO SLEEP and constant flow of people in and out.  If I totaled up my “sleep” from last night, I would have to guess I got about 2 hours.  At 3am I had labs drawn, a chest X-ray taken and nasal swabs. Why at 3am? Your guess is as good as mine. They were completed nonetheless. Earlier in the night I had an EKG along with my first set of nasal swabs. Hahaha. Yesterday was brought to you by the number 2. I’ll explain; 2 sticks to get a peripheral IV for the chest CT with contrast, 2 sticks for a blood gas, 2 sticks to get my port accessed, 2 sticks from the lab tech for blood cultures since they have to be from 2 different sites, 2 sets of nasal swabs. There may have been more of the terrible twos but due to my lack of sleep, I can’t remember. Oh who am I kidding, my memory sucks and everyone knows that. Hahaha (more…)

  • Today was CF clinic day for follow up from the hospital 2 weeks ago. Since getting out of the hospital the pain in my right front side has not gone away nor lessened. I’m still very worn out and out of breath. Definitely not better by any means.  (more…)