When someone with a disease passes away many people use the phrase “<name> lost their battle with <disease>.” That statement can be taken as if the persons disease won and took them. I know when people use that statement they don’t mean that the person was weak and let the disease win. They mean that they died and the cause was that persons disease. Some people take it as an insult. I personally don’t because I understand people’s intention behind it. Also everyone grieves differently. As a person with a disease I know that I fight everyday to keep living. I don’t necessarily feel that it is a “battle” but the life I was given even though it is much harder than some. Some days are much harder than others and some days are much better than others. Life with CF is all I know. I was diagnosed at 5 months old so I don’t know any different. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I was enjoying a BBQ with friends yesterday afternoon when I randomly checked Facebook. I scrolled through and saw posts saying “breathe easy Jennie.” I had to go back and check who it was posted for because surely it couldn’t be one of my best CF friends. I immediately got up and walked away from our group of friends. I don’t even know how to process the news of her passing. I quickly messaged mutual friends to find out what happened. We have been friends for about 15 years!! Her passing was unexpected, therefore it is a complete shock. We had plans for her to come here next month to visit when another one of my best CF friends (one of our mutual friends) would be here. We were ready for a fun time with lots of laughing. Now myself and my other friend will be making plans to lay our great friend to rest instead.
Jennie and I had many conversations about this day in our morbid way that we did. I am not ready for this day to be real. I am sad to the core. Jennie was a wife, mother and a Meme (grandma). Her family will be lost without her. My heart hurts for them as they embark on this journey of saying goodbye and until we see you again.
CF Happens 