Today was my regularly scheduled 3 month CF check up. I am seen every 3 months for check ups unless I am sick and need to be seen sooner. It seems to be a rarity that I can have an actual check up that doesn’t turn into a follow-up from IVs or being sick. Well good news is, today was just a check up!!!
First stop was the scale. I am holding stead and actually gained a few pounds which is good for me. Holding stead or gaining is what we want to see. I know most women want to lose and complain about their weight. Well when you have CF and have a pancreas that doesn’t work right you are thankful for every pound you keep on. I burn a lot of calories just breathing and coughing everyday so that is why it is important for me to eat a lot of calories and good fats. It is best that I have a reserve tank for when I get sick so that I have that to pull from when I can’t eat well due to nausea do to meds and such.
Next up PFTs (lung functions). I am happy to say that I am up a tad bit which surprises me. My FEV1 was 1.50/50%, which is basically the amount of air I am able to move. Another way to look at it is that I’m basically using the equivalent of 1 lung or 2 half lungs, mind you they are diseased lungs but they are still working. haha Last time I did PFTs my FEV1 was 1.39/47%. When you do PFTs you do the text 3 times and they take your best one. Well my best one was my first one. The last 2 were below the 1.50.
The rest of the appointment was good. My lungs sounded a little coarse but good. My heart is still beating and I do have something between my ear and it’s called a brain even though it malfunctions at times. They drew my yearly labs which check my vitamin levels, liver function, kidney function, A1C and a few other things. Vitamin levels are important because my pancreas doesn’t work correctly to send enzymes to digest my food. That is why I have to take enzymes when I eat so that I can absorb all the nutrients that I can, vitamins being one.
I will take this good report and enjoy it while it lasts. I have been off of IVs 6 weeks (as of this coming Saturday). I have been averaging IVs every 6-10 weeks maybe, give or take. I would not complain if it was longer spans that’s for sure. That is always the goal, to stretch it out as far as we can.
Until next time…