Where has my joy gone? Where is the happy-go-lucky Shannon that we are all used to? Losing my mom seems to have taken my joy away on top of my CF progressing. I had a good cry fest over our trip to KC over Spring Break. Maybe it was because I couldn’t see my mom while there as usual. Maybe it’s because I’m just a wimp and got home sick within days of being in KC. I like the comfort of home where all of my medical stuff is so I have the things I need. Packing with all the medical stuff is a pain in rear. The anxiety of “did I remember everything.” I forgot one of my inhaled meds this trip, ugh. We were gone 10 days. I defiantly could tell a difference not having it but I made it through. (more…)
CF Happens
Sometimes in life CF (Cystic Fibrosis) happens…pun intended
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I now understand why my mom slept all the time near the end of her life. No I’m not saying I’m at the end, don’t worry. She would have a good day and be able to hang and do a bunch of things then the next day she would sleep pretty much all day. She may have even needed 2 days of recovery depending on what she had going on. I’m sure I have written about this before but the reason I am writing about it now is because we had a double date last night for dinner and the Dan + Shay concert. Before that I was able to go to a very good friends promotion ceremony which was about 2 hours long with the ceremony and the party after. My busy day started at about 12pm with getting ready and we got home around 11pm. I was so very tired when we got home that I wanted to just go to bed but that’s not possible, I have to do a breathing treatment first. (more…)
CF Happens 