Well my 2018 has been shitty so far, literal and figuratively speaking.  Not that you cared to know that.  I got that virus around Christmas weekend and it seems to have found a happy home in my body.  I have been super short of breath just walking and even sitting therefore I have been using my oxygen pretty much 24/7, unless it doesn’t reach where I’m going in the house.

I had labs at the hospital yesterday and the elevators weren’t working so I had to walk to different elevators which was far away from where I had to go.  Needless to say I wished my husband was there pushing me in the wheelchair like he did today.  I got to the lab place and they said “you look terrible, what did you do, climb the stairs?”  Then once I caught my breath I explained it to them.  I had transportation take me to my car.

I had a few scary breathing days that had me in tears.  I couldn’t catch my breath after coughing attacks and it scared me.  Luckily my husband was home so he helped calm me down.  He helps me so much.  If he’s scared he doesn’t show it to me.  I’m the one crying because I can’t breathe.  With all that said…  I emailed my nurse to let her know how short of breath I still was and that I had to up my oxygen to 3L and use it all the time and that my heart rate was a bit elevated as well.

I received a phone call this morning wanting me to come in for a chest x-ray and to be seen.  The verdict of the appointment is that my x-ray looked “fine,” as in my fine, no changes since my last 2 x-rays.  Apparently my white count was back elevated to 15 yesterday when I had labs drawn.  My lung functions were down yet again to 26% FEV1.  They were 28% when I was in the hospital.

We are going to do yet another round of IVs.  This time it is Amikacin and Cefapime.  I can’t remember the dosing intervals at the moment but I know it means no sleep or broken up sleep for Shannon.

Until next time…