Today was another exciting day in lock up. I was NPO (no food or drink) as of 8pm last night because of the 2 episodes of hemoptysis (lung bleed/coughing up blood) I had yesterday afternoon and evening to prepare for an embolization.
An embolization is when they go through the groin up to the bronchi and basically cauterize the places it is bleeding from. They use dye and X-ray in IR (interventional radiology) to do the procedure. After the procedure I had to lay flat for 2 hours. That was no fun because I had to pee.
I finally managed a nap after the procedure, of course with multiple people waking me up for various things like; vitals, breathing treatment, medicine, etc. I am very sore where they went in through the groin and my chest is also sore.
I am doing my breathing treatment right now and guess what……??????
I just coughed up more blood. I coughed up about a tablespoon before I started my treatment and this one so far is about half of a tablespoon. I’m hoping it is left over and not new but it is bright red. If it continues then that may mean I will need to go for an embolization on the left side. I’m not looking forward to that of that’s the case because I am really sore from the one today.
I have talked about it before but I am going to mention it again. There are certain things in a journey of CF that seem like milestones, and not the good kind. For instance:
- First PICC line (long term IV in your arm)
- First hospital stay (lock up, club med, the hole or whatever endearing term you use)
- First round of IV antibiotics
- First hospital stay alone (meaning your not a kid anymore and you are there by yourself most of the time)
- First Port (in the chest or arm)
- First bronchoscopy
- First need for oxygen outside of the hospital and then 24/7 at home
- First time on the ventilator (vent)
- First embolization
- First bowel obstruction or any bowel/intestine problem
- First talk of CFRD (CF related diabetes)
Those are all pretty significant things in a persons journey with CF. I’m sure there are more but those are the ones that come to my mind.
I hope I don’t have to update about another embolization tomorrow.
Until next time…