3am = coughing up blood time I guess. I coughed up about 15-20 cc. My CF Doctor came to see me around 8am and decided he wanted to do a bronch to see where the blood was coming from. I went down for the bronch at 9:15am and I was back in my room by 11:30am. He said he didn’t see any active bleed areas. His next thought was that it was drainage from my sinuses/nose. He looked and said he saw some blood there.
I was moved out of the CVICU to the regular CF floor/unit. Then shortly after I got to my room transport was here to take me to the ENT. He looked up my nose and there wasn’t anything except 1 tiny spot that he cauterized. I was wheeled to the waiting room to wait for transport to take me back to my room, I started coughing up blood again. (This was around 5pm)
Now, as I am trying to type this up on my phone because the wifi at the hospital is pretty much non-existant, I started coughing up even more blood.
I am so frustrated because it’s feels like they don’t believe me that I’m coughing it up but that it’s something else. I feel the “gurgle” in my chest and then it’s the involuntary cough that brings the blood up.
Hopefully I will get some answers tomorrow because as of right now I want to go to sleep (as if that were possible) until tomorrow and wake up with an answer. I have a feeling I will have yet another bleed in the middle of the night. I’m still coughing blood up right now. So flipping frustrating. I don’t feel good as it is then this. Ugh
I’ll update more tomorrow if I know anything by then.
Until next time…