Clinic update

Today was a regular CF clinic check up.  Unfortunately I haven’t been feeling the best for about a week.  I have been coughing more and coughing up more as well as super tired.  This all could be playing into my depression and antidepressant med change.  

Clinic update:  My weight is stable.  My lung functions are basically the same.  My FEV1 was 36%/1.02L.  Not a loss and not a gain, so stable it is.  I’ll take it.  We decided on 2 oral antibiotics in hopes that it will stop whatever it is that I’m not feeling good with and ward off IVs.

Symdeko update:  I seem to be tolerating it well.  I have been having joint/tendon pain in both shoulders and elbows.  No idea where it came from but I feel like it might be from Levaquin.  It is known to cause joint problems.  Yay me!

Depression update:  I have been sleeping a lot but not great sleep.  But I have also not been feeling good so it’s probably a combo.  I am on my last week of the taper off of the Effexor.  It hasn’t been the easiest at all.  I have been on the new med Trintellix 5mg since starting the taper of Effexor.  Once I stop the Effexor I will go up to 10mg of the Trintellix.  I’m hoping and praying that it does the trick.  I am still seeing my counselor about every 3 weeks.  I’m still depressed and am waiting for the day I wake up and get to say “today doesn’t suck.”  So far my days suck.  Don’t get me wrong, I have an amazing husband who is my rock.  He makes me smile everyday even when I don’t feel like smiling.  I just can’t wait for this to be over.  It sucks.  My depression has been bad since my mom passed away, for obvious reasons.  Then when my husband retired from the Air Force we had a rough 6 months.  It’s all better now so hopefully I can somewhat “snap out of it.”  Man I wish it was that easy.  With all that said, I’m trying to hang in there as best I can.

Here I am…an open book.

Until next time…

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