Update and depression talk

I guess I should update you all since my stay in “lock up” (aka the hospital).  My creatinine (kidney level) is finally back down in normal range.  It was .91 when I last had my blood drawn at CF clinic last Thursday.  Yay for that.  Even more yay, I can start to take ibuprofen, in moderation, for my aches and pains since Tylenol does nothing for me. Continue reading

Let the roid rage begin!

Well well look what we have here…rebellious lungs, big surprise there!  I sent my nurse an email on Friday letting her know about the blood and that I felt tight and wheezy.  I also let her know that I stopped the TOBI podhaler since I am pretty sure that was the culprit to the blood AND the tightness and wheeziness.  She agreed and was “ok” with me stopping it.  As the weekend went on I was no better and maybe worse off.  I texted my nurse to ask if I could go ahead and start some prednisone that I had on hand at home.  She never got back to me because the doctor never got back to her.  She texted me this morning asking that I call her when I was up.  Continue reading