I guess I should update you all since my stay in “lock up” (aka the hospital). My creatinine (kidney level) is finally back down in normal range. It was .91 when I last had my blood drawn at CF clinic last Thursday. Yay for that. Even more yay, I can start to take ibuprofen, in moderation, for my aches and pains since Tylenol does nothing for me. Continue reading
Tag Archives: update
Let the roid rage begin!
Well well look what we have here…rebellious lungs, big surprise there! I sent my nurse an email on Friday letting her know about the blood and that I felt tight and wheezy. I also let her know that I stopped the TOBI podhaler since I am pretty sure that was the culprit to the blood AND the tightness and wheeziness. She agreed and was “ok” with me stopping it. As the weekend went on I was no better and maybe worse off. I texted my nurse to ask if I could go ahead and start some prednisone that I had on hand at home. She never got back to me because the doctor never got back to her. She texted me this morning asking that I call her when I was up. Continue reading