The Last 6 Days…

This is what the last 6 days have looked like to me…

Thursday, August 3rd:  My nurse called and said my kidney level (creatinine) was up today when I had my bi-weekly labs drawn. So I’m at the ER getting checked in then getting admitted. The plan is to get me hooked up to fluid to help flush out my kidneys. It’s not as high as it was the last time I was admitted for acute kidney failure which is good that we caught it. The reason my kidney level is high is from the antibiotics that are filtered through my kidneys. Sometimes the kidneys take a hit. I’ll keep you all updated.

Update: I’m finally in a room!! While in the ER I had a chest X-ray taken, ultrasound of my kidneys and bladder done, the ER doc saw me along with the pulmonary fellow, pain meds for this stupid rib pain. The rib pain is much worse today. I was coughing and felt something pop, not good. But with all that said I’m finally in my room and after my nurse and respiratory therapist are done I’m hoping to get some much needed sleep.

Day 2 UPDATE: I’m counting yesterday as day 1 even though I wasn’t here all day. Anywho, I tried to sleep as much as possible last night and today. My pulmonary doctor came to see me and he said my X-ray didn’t show anything broken so we agreed that it is one hell of a pulled muscle. Ouch!!!!! My other CF doc ordered lung functions which I found funny with this pain. I made them happy and attempt them. I got 16%…hahaha if that’s the case list me for transplant now! I can’t take a deep breath or blow out hard so a low number was expected. I hope tomorrow is another day of rest because when I’m sleeping I’m not paying attention to my pain. Thank you for all of your thoughts and prayers!

Day 3 UPDATE: Still in pain on my left side. An 8 on the pain scale. The pain medicines aren’t working because of the kidney issue. I was told that by one of my doctors. He said the pain meds are stay at the kidney and aren’t filtering through. Anyway, my kidney level is still the same as yesterday 2.8. I will continue fluids in hopes that it goes down. Last time I had acute kidney failure it took a week for my numbers to get in to the normal range. Also my numbers were much higher than, 6.9! I haven’t gotten as much rest today as I had hoped. Hopefully I will sleep better tonight.

(Sunday, Aug. 6th):  Quick update: I’m still in a lot pain, the doc is going to change my pain med because the 2 I’m on aren’t doing anything. No word yet on what that is going to be. My kidney level is down to 2.23, so we are going in the right direction.

Day 4 UPDATE: I didn’t get to sleep until around 3/3:30am so that wasn’t fun. That only meant I wanted to sleep all day and I tried, oh did I try. I think I “woke up” for good around 1, with a few naps after that. My kidney level came down some more to either 2.13 or 2.18. I can’t remember which one because I was asleep when they told me. Haha My pain is more under control today which is good. I moved down to a 6/7 on the pain scale. Don’t get me wrong, it still hurts a lot but I’m trying to stay on top of the pain meds so that we can keep it dulled a bit. I was supposed to have the hyda scan today but had to cancel due to the fact I can’t take pain med from midnight the night before. Oops. Plan is to keep doing what we are doing I guess until we hit the magical number of the normal range (.5-1.1).

Early morning update: kidney level is 1.9!!! We are getting there folks, we are getting there!

Day 5 UPDATE: Kidney level is down to 1.6 today. Word is, if my number is still trending down AND I’m only using Percocet (which I am) for pain, then I can go home tomorrow. Yay!!!

Day 6 UPDATE: Kidney level is 1.4! I’m going home! Now just to wait on walking papers. I will come on Monday to have labs drawn to make sure my kidney level has still continued to go down into the normal range.

Which brings us to now!  I am home.  Always after I am gone for any period of time there is stuff for me to do when I get home.  Even though my husband is here and gets the mail I have to go through it because he leaves it all piled up for me on the counter.  I have to unpack.  I have to take breaks to love on the boys (our dogs) because they won’t leave mama alone for a little bit.  I say that, but now they are asleep in their beds in the office while I type this.  I just copied my statuses from Facebook over to here to make it easier and to keep track/record of things.

We still have our fundraiser in 30 days!!!  It snuck right up on us for sure.

Until next time…

Oscar and Oscar II have arrived

Today was an early start.  I had to be at the hospital for labs early because we ha plans to go to Dollywood the amusement park and wanted to be there when it opened at 10am.  So I made to the hospital for labs, stopped for gas on the way back and made it back home by 8:05 am.  We made it to Dollywood around 10:15 am, they opened at 10am.  Our tradition in our family is that we have a family day and/or night before one of us goes away for an extended period of time. My step-son is heading to his mom’s for the summer so that meant a family day was in store.  What I learned today was 1.) handicapped parking when at an amusement park is a life saver 2.) you don’t realize how much lung power you use while riding roller coasters until you are out of breath while riding one 3.) long lines for rides give you time to calm your breathing and regain control of it 4.) your inner thighs get sore from “holding on” and finally 5.) I was right when I said that I could see a lot of coughing from laughter in my day.  We sealed family day by playing a game of Sequence after dinner.  Continue reading

Stubborn kidneys

Another day in the books…  I am still nauseous and my eyes feel like they can’t focus at times.  I have pretty much no appetite and nothing sounds good at all but I keep snacking to keep my calories somewhat up.  My calorie intake is defiantly not where it needs to be but some is better than none.  My creatinine has been on a roller coaster.  So here are the numbers.  Monday it was 5.3, yesterday in the ER before fluids it was 5.99, last night after a bag of fluid and half a bag of fluid with sodium bicarb it was 5.6 and this morning it was 5.8.  As I said before the normal range is .5 – 1.1. Continue reading